On our own

My little bean and I will be out and about today. We are going to visit my sister and give her Easter gifts for the family. We are also going to have lunch in a lovely place in the city centre called “Hobbs coffee shop”.

He likes it there as he can watch buses go by as he eats. They have huge windows to look out of and he would , quite happily, sit there all day! At least it gives me a chance to get away from …..SPONGE BOB!!!

I am busy arranging the trip to Worcestershire on Monday. I am looking forward to spending some quality time out. Park attwood looks wonderful. I will take some pictures and hopefully, be able to update daily.

Well done John and Christine

Congratulations to John and Christine Sach’s Who attended a charity auction which raised £28,800 for funding McMillan nurses. That is a fantastic sum of money. The evening was a black tie event, I hope they feel proud of themselves and all who are involved as they have done very well. 

 I cannot find a link but I am going to add the script from the newspaper article to the blog.

Anyone who would like to see it, I can forward it to you.

“Inspired by the work of the heart of Kent Hospice, bidders at a charity auction pledged the most money, not for glittering prizes,but to fund MacMillan nurses.

The hospices black tie spring ball, at Turkey Mill, Maidstone, Last Friday, raised £28,800.

While bidding reached upwards of £250 per lot, the best supported item was one in which the guests were invited to donate towards the cost of MacMillan nursing.

It costs about £150 per day to fund the work of one MacMillan nurse. Auction bidders paid for 41 days. The hospice has a team of 6 MacMillan nurses and a manager who provide care for patients and their carers at the hospice and at patients home.

Jennie Hubbard, the hospice’s director of fund raising and marketing said "we are overwhelmed with everyones generosity”.

The picture with the article features John and Christine Sachs with Nicholas and Stella Roy and 

Good Friday and back to work

Well…. I hope it is a good Friday. I am feeling much better today as I spent most of the day sleeping and generally resting. I think that the nausea may be to do with what I am eating. I am going to go back to my sugar free, alcohol free diet as I didn’t feel this ill when I was doing it. I don’t care if I lose a little weight as I am over my BMI which should be 8st 7lbs and I am over 9 st, 9st 6lbs to be exact..

I will be sensible though and I do have a fairly good appetite.

I am going back to work today and will then have 2 weeks off for treatment, My GP has written me a sick note for the 2 weeks. He has been so supportive. I am grateful for having such wonderful professionals around me. I will miss my children but I think they will understand why I have to do this.

I am looking forward to it and hope my sister is ready for relaxing and doing nothing for a whole week!

Not too good

I didn’t go into work today as I have been tired and nauseous. I will go back to work tomorrow and then arrange traveling for my sister and I to go to Park Attwood clinic. I have heard such wonderful things about it and I am sure I will come back a different person. I am not expecting miracles but if it makes me feel more positive then, it has to be good. I will try and add info to the blog and will find out if they have Wi Fi.

My GP and Oncologist have been wonderful and very supportive of the treatments I want to try. that makes it so much easier to deal with.

I will be back on top tomorrow and will go to work, I am not working the weekend so will fill it with packing and spending time with my children who I will miss so much. My daughter will be taking care of Kieran, my little son and he will also be with his daddy. I am sure he will have a great time without the nagging mother around : )

Easter egg hunt

The picture above is of my son, Kieran and myself at his school easter egg hunt.

 The weather was beautiful and the children thoroughly enjoyed themselves. We had a lot of parents this year that volunteered their day to giving the children the experience of an egg hunt and it was such an honour to be able to put a little back into the immense support we have had from the school.

Park Attwood

Park attwood clinic called (Mistletoe therapy) and arranged an appointment for Monday 25th March!

I was quite surprised how soon it is. I am busy arranging the family so I can go to the clinic as I will be there for 5-7 days.

My sister will hopefully coming with me and the week after I will see Dr Callebout. 

I really hope I see a result, I know Theo won’t go away but maybe the treatment and diet will slow him down. Theo has been really noisy the last week and this seems to be disappearing now and has turned into a very mild ache. The breathlessness hasn’t left yet, I am still doing everything as normal. I had to let down a wonderful friend who had been nagging a lot of people to go out for an evening. His face was stunned when I told him i couldn’t go as I would be in Worcestershire. I felt so bad about it but I hope they go out any way. I have some really amazing friends. Don’t ever change, you are wonderful, you know who you are.

Only time will tell.

Weepy few days

I have been terribly weepy over the past few days. It started when I got the pain in my back and I think it is because I am so frightened at the moment. The pain has subsided today and I hope it continue to go.
I have been feeling so sorry for myself, I think I have bored my friends rigid.
My son has an Easter egg hunt tomorrow at his school and that will make me a little more positive.
I do try and tell myself how lucky I am as this time last year I didn’t think I would have this Easter with him. I should feel grateful but I find it so difficult as I should be looking forward to many more Easters with him.
I will add some pictures tomorrow of the Easter fun my son has.

On a more political note, Gordon Brown is considering more help for people with Plueral plaque.
I have added a link below with more info.

http://www.armleytoday.co.uk/news/PM-to-intervene-in-MP39s.3741966.jp

Contact from Dr Callebout

I have heard from Dr Callebout, I am going for an appointment with him on 4th April. I am so pleased that I have an appointment and will look forward to meeting him and starting my very strict diet.

Breakfast bunch

We all got together for breakfast. We always have a giggle and today was no acception.
We talked about the Anne Summers evening and, as you can imagine, the conversation took a different avenue than usual.
My friends are so wonderful and I look forward to the next installment!