Meeting in Plymouth

I attended the Lowe family meeting today. It was very informal and we discussed issues surrounding Mesothelioma, claims and fund raising.
At the end of the meeting, a gentleman said he felt like a fraud because he has plueral plaque.
I told him that my dad had plueral plaque and he should not feel a fraud. Plueral plaque is caused by asbestos exposure and is not recognised as an industrial disease by the goverment to the joy of the insurance companies. This should be turned around as the person who has the disease can only get it one way, through exposure. This website is to support anyone with an asbestos related illness. I hope it is helpful and it is called Mesothelioma and me as it is about my illness and how I cope with it. the site is still available for support to other asbestos related illnesses.
We discussed Alimta which is up for appeal on 23rd November as it is available, at present, on the NHS in some areas and if the patient is recieving it before it was passed a few months ago. The appeal will hopefully overturn this ruling and it will be available anywhere to anyone who requires it.
More information can be found in the link below :
http://www.thompsons.law.co.uk/ntext/dismissed-appeal-mesothelioma-drug-alimta.htm

We discussed claiming when someone has asbestos illness. If the person recieves compensation for the illnes they have been compensated for, they have to pay back benefits that were paid out previous to the claim. This includes DLA, Attendance allowance, Incapacity benefit,Industrial injury benfit, Constant care allowance and Severe disablement benefit plus many more……(sounds like an ad for a CD!)
It all seems a little unfair but that is the law of the land.
More information can be found on this site :

http://www.dwp.gov.uk/advisers/gl27/count.asp

We also discussed Action Mesothelioma day and what Plymouth should do. Jackie Lowe thought of the enviroment and releasing balloons would not be an option. I suggested we have a fund raisnig awareness day and to start it we have a 2 mins silence for all those who have perished to Asbestos related diseases. It was also suggested that we could get some fish food type items, like flowers or leaves I suppose, to put on the water, something like the confetti for birds to eat.
Any ideas,please contact the Lowe family at :

LJacks2020@aol.com‏ and the website address for the Lowe family and their campaign is :
http://www.prospect.org.uk/healthandsafety/rogerlowecampaign/index

or myself at Phu_phita@hotmail.com

It was a quiet meeting (apart from the little ones playing :) ) and the second one was talked of. It may be after Christmas as we are getting very close now.
Any feedback will be gratefully recieved.